Inclusa Dementia Toolkit
Description: A method to create person-centered care & support for people living with dementia. It helps the person living with dementia to have a voice in the plan and helps caregivers to better understand the whole person.
Talking to Healthcare Providers:
Resources for Caregivers for & People Living with Dementia
Self-Care Resources for Family Caregivers
COVID & Caregiving for People Living with Dementia
Books Written About Dementia
Looking for resources learn more about dementia? Check out the great resources below.
|The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss, 6th Ed.||Nancy L. Mace, MA & Peter V. Rabins, MD, MPH|
|Activities to do with Your Parent who has Alzheimer’s Dementia||Judith A. Levy, EdM, OTR|
|Ahead of Dementia: A Real-World, Upfront, Straightforward, Step-by-Step Guide for Family Caregivers||Luciana Mitzkun|
|The Alzheimer’s Action Plan: What You Need to Know–and What You Can Do–about Memory Problems, from Prevention to Early Intervention and Care||P. Murali Doraiswamy, M.D., Lisa P. Gwyther, MSW, & Tina Adler|
|Alzheimer’s and Dementia for Dummies||American Geriatrics Society & Health in Aging Foundation|
|Alzheimer’s Care – The Caregiver’s Guide to Understanding Alzheimer’s Disease & Best Practices to Care for People with Alzheimer’s & Dementia||Nancy J. Wiles|
|Alzheimer’s in America: The Shriver Report on Women and Alzheimer’s||A study by Maria Shriver & the Alzheimer’s Association|
|Before I Forget: Love, Hope, Help, and Acceptance in Our Fight Against Alzheimer’s||B. Smith, Dan Gasby, & Michael Shnayerson|
|The Best Friends Approach to Dementia Care||Virginia Bell & David Troxel|
|A Caregiver’s Guide to Lewy Body Dementia||Helen Buell Whitworth & James Whitworth|
|Dementia Caregiver Guide||Teepa Snow|
|Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers||Jolene Brackey|
|Finding Life in the Land of Alzheimer’s: One Daughter’s Hopeful Story||Lauren Kessler|
|Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease||Joy Koenig Coste|
|Memory’s Last Breath: Field Notes on My Dementia||Gerda Saunders|
Books Written About Dementia for Children
Looking for resources to help children and teens learn more about dementia? Check out the great resources below.
|Nice to Meet You…Again||Suzanne Bottom-Jones, RN|
|What’s Happening to Grandpa?||Maria Shriver|
|Remember, Grandma?||Laura Langston|
|Remember Me? Te Acuerdas de Me?||Sue Glass|
|A Heart Full of GEMS||Linn Possell, Teepa Snow|
|Always My Grandpa: A Story for Children About Alzheimer’s Disease||Linda Scacco|
|My Little Grandmother Often Forgets||Reeve Lindbergh|
|Still My Grandma||Veronique Van Den, Abeele and Claude Dubois|
|Striped Shirts and Flowered Pants||Barbara Schnurbush|
|The Graduation of Jake Moon||Barbara Park|
|The Last Best Days of Summer||Valerie Hobbs|
|The Memory Box||Mary Bahr, David Cunningham|
|Wordsworth Dances the Waltz||Frances Kakugawa|
|When My Grammy Forgets, I Remember: A Child’s Perspective on Dementia||Toby Haberkorn|
|Papa’s Changes, Dementia Through a Child’s Eyes||Linda L. Osmundson|
Source: Dementia Action Alliance Resource Center: Books
Other Resources for Kids
- Alzheimer’s Association resources for kids, teens and parents: https://www.alz.org/help-support/resources/kids-teens
- Alzheimer’s Australia has a website nicely organized by age groups, from pre-school through age 16+: https://dementiainmyfamily.org.au/
Dementia Friends Wisconsin – Wisconsin Alzheimer’s Institute – UW–Madison
To date, Wisconsin has 1,632 Dementia Friends, 242 Dementia Champions, and 42 Dementia Friends Master Trainers! Dementia Friends is a global movement to change the way people think, act, and talk about dementia. It started in the United Kingdom and w…
Interested in becoming a Dementia Friend or hosting a Dementia Friend session? Inclusa can help!
Email: firstname.lastname@example.org for more information.
Dementia Webinars & Associated Resources
The Dementia Informed Training Awareness and Skills presentation was prepared by Suzanna Waters Castillo, PhD, MSSW with the University of Wisconsin-Madison through a Dementia Grant obtained by the University of Wisconsin-Green Bay. This presentation includes 10 modules in total. For the Behavioral Health Outcome project we are utilizing 3 of these modules. Currently these are the only ones that have been created for a self-study. For additional information on this presentation you may contact Nancy Tischbein at 715-635-5420 or email at Nancy.Tischbein@inclusa.org.
- Dementia Awareness and Skills Webinar – Module 8: Communication
This module explains how changes in the senses in a person with dementia play a key part in how the dementia patient acts and reacts to situations.
- Dementia Awareness and Skills Webinar – Module 9: Making the Connection
Module 9 offers techniques to help establish a positive connection between the dementia patient and the caregiver.
- Dementia Awareness and Skills Webinar – Module 10: Unmet Needs
This module helps give insight to how dementia patients may communicate to express unmet needs, and how caregivers can learn cues to prevent escalated situations.
Other Helpful Resources
Alzheimer’s Association (National) & Wisconsin Alzheimer’s Association
Description: The Alzheimer’s Association leads the way to end Alzheimer’s and all other dementias by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.
Alzheimer’s & Dementia Alliance of Wisconsin
Description: A local resource for individuals and families impacted by Alzheimer’s disease or related dementia. They offer individual and family consultations; caregiver support groups; as well as education and early-stage enrichment programs.
Teepa Snow’s Positive Approach to Care (YouTube Channel)
Description: This YouTube channel is one of the ways Teepa Snow and the Positive Approach to Care team share out information about Dementia – including Alzheimer’s, Lewy Body, FTD, Vascular and many more – so that family and professional care partners can gain knowledge and build skills to become better care partners. See also: http://www.teepasnow.com
UCLA Alzheimer’s and Dementia Care Program: Caregiver Training Videos and Webinars
Description: A series of videos produced by the UCLA Alzheimer’s and Dementia Care program to help caregivers understand how to better care for persons living with dementia. There are also free, live-streaming webinars that provide information about Alzheimer’s disease and other dementias for caregivers, loved ones, and others.
Training Curriculum: Alzheimer’s Disease and Related Dementias (HRSA)
Description: Contains 16 core modules and four supplemental modules in PowerPoint format. Designed to be used by educators to train the primary care workforce about dementia care and to help providers address caregiver needs. Developed by the Health Resources & Services Administration, the primary federal agency for improving healthcare to at risk populations in the US.
Dementia Care System Redesign – Wisconsin
Description: The Wisconsin State Dementia Plan for 2019-2023 (State Plan) is the latest of a series of efforts to strengthen the state’s dementia care system, and replaces the Wisconsin Dementia Care System Redesign Plan published in 2014. More information about the origin and accomplishments of the 2014 Redesign Plan can be found on the Department of Health Services website.
The four main focus areas:
- Care in the Community
- Health Care
- Crisis Response for People Living with Dementia
- Facility-Based Care
Wisconsin Alzheimer’s Institute
Description: From the University of Wisconsin School of Medicine and Public Health. Educational presentations, research opportunities, information about services, and other Alzheimer’s and other dementia specific resources.